Discharged and Going Home

  • 7 лет назад
December 7 and 8 new\r
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Sunday night we were finally able to leave Yale New Haven Childrens Hospital after a brutalof severe dehydration caused by an intestinal infection known as C Dif. After any hospital stay that we have had (and we have had ALOT) over the years, I always feel depressed and relieved at the same time. It just wakes me up to the f that I do have a very fragile child, and that this is my life. And then Daniel gives you that handsome smile and quirky little expression and yes, its worth every bit of every emotion. My love for my children is so vast that nothing can ever penetrate it. You do, what you have to do. I did lose all of my Christmas spirit, and dont really feel like dealing with any of it. However, I am hoping that it will come back. December 14th is coming up, and that is an extremely sad day, so I think that is in my head as well. Things will never be quite the same this time of year after December 14, new. \r
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Good to be home with my dog, my fire, my home. THANK YOU ALL FOR THE WELL WISHES AND PRAYERS!!! The community of support I have from You Tube and facebook is outstanding. Love you all.\r
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**********************************************************************My middle son, Daniel John Hasselberger was born on November 22, 1997, with a rare brain deformity called Polymicrogyria. The deformity happened due to a virus called CMV, or cytomegalovirus. He has seizures, respiratory problems, can only eat by g tube, is in a wheelchair, can not speak, and has had countless surgeries and hospitalizations over his 17 years. We are a family of 5 from Sandy Hook, CT and this is our journey. \r
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Every day is full of new things that we dont expect. I am Julie, Daniels Mom. I left my full time career as an HR Director 11 years ago because Daniel needed me. The struggle, the sacrifices, the sibling love, and miracle after miracle.\r
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Why did I create this channel? For support, to help other families dealing with the same diagnosis, to help me cope with depression and isolation, etc. Please leave comments and help us grow and develop this channel. Life is incredible, and I want to share our story. \r
Julie Hasselberger \r
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Subscirbe to this channel\r
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My blog site about life with Daniel\r
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twitter @jhasselberger \r
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Instagram jhasselberger \r
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facebook Julie Hasselberger\r
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facebook page for Daniel “Daniels journey with Polymicrogyria”\r
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email jhasselberger@snet.net \r
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Make a donation to help with Daniels expenses\r
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Daniels sister - Check out her channels\r
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Sarah Hasselberger\r
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Please watch: HANGING BEACHBALL \r
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