The new European Health Data Space: how will it ensure that your data is kept safe?
The future European Health Data Space will share citizen’s health data
across the continent for the purposes of scientific research. So how will your data be kept safe?
across the continent for the purposes of scientific research. So how will your data be kept safe?
Transcript
00:00 When we talk about health data, we think security, because it's sensitive data.
00:05 When data circulates inside a computer, there's no such thing as zero risk.
00:10 The only answer to this is to have regulation that's efficient, allows fluid access to data, and is extremely secure.
00:24 So in practice, how does the Health Data Hub work? There are several systems in place.
00:30 At no point in the Health Data Hub data pipeline process are we allowed to access directly identifying data.
00:48 Within the platform that we've built, with the machines in France to meet European standards, the data is encrypted.
00:54 This means that it's like encrypted passwords on the internet. It's the same thing, but obviously with extremely high levels of encryption.
01:05 We open secure bubbles for each research project that operates on our platform.
01:12 These bubbles are totally sealed from each other, totally independent, and the researchers only have access to the pseudonymous data that they need.
01:21 Obviously there's no way to take the data out of this bubble, and there's a criminal ban on trying to re-identify people.
01:28 people.
01:29 [MUSIC PLAYING]