"I thought I had a brain tumour after I went from laidback to aggressive"
Credit: SWNS / Claire Burt
A mum was left “in tears” when her baby girl was born with a large 'birthmark' on her forehead.
Claire Burt, 32, was shocked to find her daughter, Lulu, 10 months, was born with a congenital nevus.
This is a type of pigment that appears at birth or during a baby’s first year.
She was told Lulu’s ‘birthmark’ could become cancerous - and she may have internal ‘birthmarks’ which could cause issues like motor delays and learning difficulties.
A mum was left “in tears” when her baby girl was born with a large 'birthmark' on her forehead.
Claire Burt, 32, was shocked to find her daughter, Lulu, 10 months, was born with a congenital nevus.
This is a type of pigment that appears at birth or during a baby’s first year.
She was told Lulu’s ‘birthmark’ could become cancerous - and she may have internal ‘birthmarks’ which could cause issues like motor delays and learning difficulties.
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LifestyleTranscript
00:00Do I feel that my brain's dying? I probably won't live to see my 60s.
00:10I started feeling like the ground when I was walking was unsteady, like I was on a boat.
00:17My family started telling me that I was repeating questions, not remembering
00:25the answer or that I asked the question to begin with. Just getting confused and not understanding
00:35things that people were telling me as well as I used to.
00:46The prospect of dementia wasn't really, it didn't cross my mind. I didn't really know
00:52how affected I was. July 1st, I think of 2020, and it's the diagnosis is major neurocognitive
01:02disorder due to fetal alcohol syndrome, hydrocephalus, and repeated concussions.
01:10I'm in stage five now. At the time of diagnosis, I was in stage four. And the prognosis is,
01:20they don't really know how long before I hit the next stage. I probably won't live
01:30to see my 60s. There's just not enough brain mass and my brain is atrophying
01:36at an accelerated rate. So it's not a very good prognosis.
01:49So I don't struggle with anxiety. That's just something that turned off in my brain
01:56when the atrophy happened. Same with being scared. I very rarely feel scared. I get angry and agitated
02:05that's how my symptoms show up for me. Like whenever I run into those walls of, oh, this
02:12word's not available to me, or this task is not available. Like I can't figure things out.
02:18That's when I know that the atrophy is occurring.
02:22What I found was there was a lot of people like me that, and you know, younger than me,
02:29that are experiencing the same type of situations. They all have
02:36different types of dementia. There's people with FTD, Lewy body dementia,
02:45vascular dementia, and so on. And so I was able to work with people who were experiencing
02:52Alzheimer's. I mean, it's just, we all, even though we all have different types of dementia,
02:57we do have a lot of things in common. And it just really gives us each a sense that,
03:06you know, we're not in this alone.