Woman's extremely rare condition links her eyelids to her jaw
Credit: SWNS / Mandy Bardisbanian
A woman has an extremely rare condition that links her eyelids to her jaw which causes her eyes to droop - when she opens and closes her mouth.
Mandy Bardisbanian, 33, is one of only 300 people in the world with Marcus Gunn Jaw-winking Syndrome - which has caused her to be bullied and self harm.
The rare genetic disorder means nerves and muscles of the jaw are linked to the eyelid.
One of her eyelids will droop and open when she moves her mouth.
A video shows Mandy's eye opening and closing as she's eating food.
A woman has an extremely rare condition that links her eyelids to her jaw which causes her eyes to droop - when she opens and closes her mouth.
Mandy Bardisbanian, 33, is one of only 300 people in the world with Marcus Gunn Jaw-winking Syndrome - which has caused her to be bullied and self harm.
The rare genetic disorder means nerves and muscles of the jaw are linked to the eyelid.
One of her eyelids will droop and open when she moves her mouth.
A video shows Mandy's eye opening and closing as she's eating food.
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LifestyleTranscript
00:00I am about to show you something that almost 100% guaranteed you have never seen before.
00:06I have something called Marcus Gunn Jaw Ink Syndrome. It's where a nerve from your eyelid
00:11that's supposed to go to your ear went to my jaw instead. So whatever my jaw does, my eyelid does.
00:17Watch this eye.
00:22Or when I chew.
00:23It is such a rare condition that most doctors will never see it in their entire careers,
00:32and most of us will go through our entire lives without ever meeting anybody like us.
00:36If you have Marcus Gunn Jaw Ink Syndrome, please know that you are absolutely beautiful and you
00:40are not alone. For everybody else, if you see something a little weird on somebody,
00:46maybe think twice before commenting on it. I also have something called ptosis. See how this
00:52eyelid hangs lower than this one? Most of us have ptosis along with our Marcus Gunn,
00:56but not always. According to the National Organization of Rare Diseases, there's only
01:00about 300 of us on record in the world, which is a little hard to believe since so many of
01:04you have reached out to me. If you're not sure, please go see an ophthalmologist and ask them
01:08questions. They'll be very excited to see you because you're probably the only one they will
01:11ever see in their careers.