At first glance, it is not obvious that Abbie Evans lives with a life-threatening skin disease. She is a typical teenag | dG1fRk5mY19vQlVFNkU
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Short filmTranscript
00:00The girl was fearless, wouldn't you rather have her be fearless than walk around scared
00:17of everything?
00:18I can't handle anything holding me back.
00:27I've got a rare skin disease called Epidermolysis Bullosa.
00:31My skin is so sensitive that the slightest touch should make my skin fall off.
00:37This hand is not yet done until it's done.
00:41I feel like my life is frozen.
00:43I'm totally a caged bird sometimes, being tied down at home with mom and dad.
00:50She has the same wants and needs as any other 18 year old that's starting to have some independence.
00:56Now that she's an adult, I'm like, how are we going to get through this part of her life?
01:02I want to live life to the fullest because I don't know how long I've got left.
01:07Damn it, I'm a rebel.
01:09I want to take a break from all this medical stuff.
01:12But who's going to take care of you?
01:14I think I can take care of myself now.
01:26Look at the butterflies!
01:31I am wondering if you guys had any opening clinical trials that you needed people for?
01:38I want to go alone.
01:43I don't have an easy life whatsoever.
01:46But I'm never going to give up.
01:48And I actually like it.
01:50I'm just a badass.
01:55I'm a badass.