Marion is an artist with FSH, an incurable muscular myopathy. She guides us on the path she has taken to no longer ident | dG1fVlpOdU1yZHlkdUk
Category
🎥
Short filmTranscript
00:00My father, my sister and I, we are connected by an invisible thread, but for a long time
00:11we have ignored it.
00:12For a long time, I was harassed by a small inner voice.
00:34You won't be able to be happy with that, you won't be able to draw, you won't be able to dance,
00:40you won't be able to walk.
00:41One day, you will end up in a wheelchair.
00:44This voice appeared when I learned that I had a rare disease, FSH.
00:51I started a long journey, riddled with uncertainty and the fear of degrading myself.
01:10The art of collage is to hold pieces in coherence.
01:19FSH does the opposite, it fragments me.
01:24My name is Marion, I am an artist and my story does not end with these three letters.