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00:00You
01:00Can't miss it. We can't miss it. Why I'm a big mama. I didn't matter. I leave home. I'm nothing. I like being y'all ball
01:07Back. Oh, thank you. I'm okay. Mama. Nelly
01:30You
01:43You know the relax will come when you study drugs in most cases now that I have not even started a drugs
01:49The most important thing is we don't even want them to run into complication
01:54So complication is the most difficult aspect, you know, if they lost their finger
01:59Where are you going to get the finger and give them again?
02:03If they lost their sight who is going to give them sight
02:08So what we are afraid is even the complication as they are staying without a drug the disease is progressing
02:16day by day
02:29You
02:39In the last
02:42It's about a year now
02:44We don't have nepotism in the country. And this is the first time we are seeing this kind of very strange very painful
02:53situation
02:55Where the participants who you know, really like I just said they belong to the poorest of the poor
03:02I'm not able to access this life-saving medication
03:05for the first time
03:07These drugs are meant to be free
03:09They're meant to be brought in by WHO and yet here we are one year plus later not having those drugs