Céline Dion-Extra-11 Juin 2024
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00:00or babies. Oh my God.
00:05Then Celine Dion bowing. She will sing again no matter what it takes. Even if I have to crawl.
00:12How her voice provided the first clue something was wrong with her health.
00:16Cause I'm your lady.
00:22So for certain Rihanna is not retiring from the stage but will Celine Dion have to?
00:30Cause I'm your lady. I started to sound more nasal.
00:36Celine showing she can still belt it out even as she details the health crisis
00:41that nearly stole her ability to sing. So I had to and you are my man.
00:48My whole team had to just they were trying to find my voice too.
00:52Find her voice and figure out what's going on.
00:56Celine revealing she was on stage the first time it hit her as something serious was happening.
01:00We lowered the songs a little bit with the keys and project more nasal
01:06and hope. I did my very best because my fans accepted my invitation.
01:13Speaking to today's Hoda Kotb in a special airing tonight on NBC,
01:17Celine said she was more concerned about disappointing her fans than dealing with
01:21her own health. I did not know what to tell them. I will do my best tonight.
01:26No, you're gonna give your all or you don't come at all. I did not take the time. I should have
01:33stopped. It took nearly a decade of tests to learn that she was suffering from the debilitating
01:38disease stiff person syndrome, which can cause slurred speech, double vision, painful muscle
01:43spasms and severe body stiffness. Her body was enduring something that was unimaginable.
01:49Director Irene Taylor, who captured Celine's struggle in the documentary I Am Celine Dion,
01:54underscores the seriousness of her condition. I wasn't sure if she was aware of it
01:58and I wasn't sure if she was going to survive it. Premiering June 25th on Prime Video,
02:05fans are taken behind the scenes with a rare look inside her personal life and
02:09struggles with her health. And you can feel the pressure she was under to keep going,
02:13to keep performing.
02:18But telling her fans the truth about her illness in 2022 was something she felt she had to do.
02:24Have been diagnosed with a very rare neurological disorder.
02:28I live one day at a time. That is Celine's new people cover story available on newsstands
02:34nationwide Friday. And in it, she gets candid about her brutal battles told on her kids.
02:39I barely could walk at one point. My kids started to notice. I was like, OK,
02:43they already lost a parent. I don't want them to be scared. She reassured them. I'm not going
02:48to die. It's something that I'm going to learn to live with. I am Celine Dion. It's intimidating
02:56for me to say my name because I hear it a lot. Oh, this is Lydia. Oh, this is. And when you're
03:04not well, I didn't want to hear my name. I did not know who I was anymore because I'm not the
03:12person that I used to be. Now she's readying herself to perform again soon, no matter how
03:18tough it might be. I'm going to go back on stage even if I have to crawl, even if I have to
03:25talk with my hands. I will. I will.