Aired (August 26, 2024): Kapansin-pansin sa 28-anyos na si Judy Anne Benico ang unti-unting paglubog ng balat at laman sa kanyang mukha. Mayroon kasi siyang kondisyon na kung tawagin ay Parry Romberg Syndrome. Sundan ang kanyang kuwento sa video na ito.
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00:00Susan, sometimes, the uniqueness and uniqueness of a person is the reason to look at their body.
00:06You're right, brother Kim.
00:07Especially that you don't do anything bad to others and you just want to live a peaceful life.
00:12You will be an inspiration to many.
00:14That's my story, Dapat Alamo.
00:22His face, his skin and his flesh are slowly sinking.
00:27Judy has been having this condition for more than two decades.
00:31When I was five years old,
00:33they noticed that my left side of my face wasn't developing.
00:39Her condition is called Parry-Romberg Syndrome.
00:47Judy was diagnosed with it because of her face.
00:50I was always bullied. I didn't get into school.
00:54Sometimes, they called me Tabing, like that.
00:58Half of her face is sunk and it looks like the skin and flesh are falling off.
01:03Of course, I used to get hurt.
01:05I just didn't want to go to school and live a normal life.
01:10They noticed the change in Judy's face when she was only five years old.
01:15When I was born, it was normal.
01:17When I was three years old,
01:19my parents said that I just got fat.
01:23When I was five years old,
01:25they noticed that my left side of my face wasn't developing.
01:31According to her specialist, this is a rare disease and there's no cure for it yet.
01:35It's hard because there's a lot of judgment.
01:40This is called Parry-Romberg Disease.
01:43Instead of trying different treatments for her condition,
01:46Judy chose to continue her studies.
01:49When I was 18 years old,
01:51I was told to undergo surgery.
01:52But I didn't accept it because I was a college scholar.
01:56I didn't want to lose my scholarhood.
01:58I used to ask myself,
02:00Lord, why did I become like this?
02:05Neurologist Dr. Paul Emanuel-Liambao explained that
02:08the Parry-Romberg Syndrome is not yet cured.
02:11This is a condition where there's a gradual reduction
02:15in the size of our skin on our cheeks
02:18and different parts of our face.
02:21The exact cause or cause of this disease is still not known.
02:26But other studies say that this can be associated with trauma,
02:32exposure to radiation, and other congenital diseases.
02:37In 2016, Judy finished her B.S. IT major in Business Analytics.
02:42I finished college so that I can prove to others
02:47that I can handle this condition.
02:54Judy tried to find a job.
02:56I feel like what they're looking for is someone with a pleasing personality.
03:00At first, I found a good job.
03:04I worked there for almost 7 years.
03:07Now, I'm doing videos on social media.
03:12I'm doing live streams.
03:15I want to give awareness to everyone that even though we're like this,
03:21we can inspire and give confidence to people with disabilities.
03:31Dr. Liambao also added that it's possible for Parry-Romberg Syndrome to be a cause of trauma
03:36and that it's not curable.
03:38Parry-Romberg Syndrome is not curable in most cases.
03:43Under our skin, there are muscles, cartilages, and nerves.
03:47All of these can be affected.
03:50For many patients with Parry-Romberg Syndrome,
03:53our only problem is the cosmetic effect.
03:55This will depend on the structures that are affected.
03:59There is no specific medicine that can be given to totally cure this disease.
04:07Even though there is no medicine for Judy's condition,
04:09it was not a barrier for her to continue her life.
04:29For more information, visit www.FEMA.gov