A woman who is "allergic to everything" can only eat oatmeal and says fish, nuts or mustard could prove deadly.
Caroline Cray, 24, first realised something was wrong when she ate an ice cream and went into anaphylactic shock - spending 12 hours in hospital - in September 2017.
She had three more severe allergic reactions that month to bread and pizza.
After eating rice and beans with her family, Caroline reacted again and spent 12 days in intensive care.
After 10 months of tests, she was diagnosed with rare chronic illness mast cell activation syndrome (MCAS) - which causes repeated severe allergy symptoms - in May 2018.
She now has a diet that consists of just oatmeal and EleCare - an amino-based acid infant milk - and says everyday things such as fish, peanuts, nuts, sesame and mustard could prove deadly.
Caroline Cray, 24, first realised something was wrong when she ate an ice cream and went into anaphylactic shock - spending 12 hours in hospital - in September 2017.
She had three more severe allergic reactions that month to bread and pizza.
After eating rice and beans with her family, Caroline reacted again and spent 12 days in intensive care.
After 10 months of tests, she was diagnosed with rare chronic illness mast cell activation syndrome (MCAS) - which causes repeated severe allergy symptoms - in May 2018.
She now has a diet that consists of just oatmeal and EleCare - an amino-based acid infant milk - and says everyday things such as fish, peanuts, nuts, sesame and mustard could prove deadly.
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FunTranscript
00:00 We are going to make oat flour and oat milk today.
00:05 We of course need oatmeal.
00:08 And then I just cleaned the living hell out of this because it's my family's.
00:13 So none of my main allergens have ever been in there, which is good.
00:17 I'm pretty sure all we do is just add the oats in and then blend it.
00:24 [BLANK_AUDIO]
00:31 Okay, I think this is a sleigh.
00:33 [LAUGH] It looks very flowery.
00:37 And my water.
00:40 I'm just gonna eyeball this.
00:42 Just washed my hands.
00:44 Now we are going to try to make cookie dough balls.
00:49 We've got nine cookies.
00:52 Also something I wanna note is that you're not supposed to heat up the formula.
00:56 So I can't bake it or microwave it or anything.
00:59 So we're gonna use the formula as frosting after we take the cookies out and
01:04 let them cool off.
01:06 These are going in the oven.
01:08 [SOUND] This is an eight ounce cup and
01:14 that's equivalent to one cup.
01:19 [SOUND] Apparently you're supposed to strain it,
01:24 but I don't really feel comfortable using a dish cloth.
01:31 So I'm just gonna try it straight up and we'll see how this goes.
01:36 [BLANK_AUDIO]
01:38 Cheers.
01:39 [BLANK_AUDIO]
01:44 [LAUGH] Odie.
01:46 I'm gonna mix in some aloe care and hope that does something.
01:50 [BLANK_AUDIO]
01:53 Mm-hm.
01:53 [SOUND] All right, we're taking the cookies out.
01:56 [BLANK_AUDIO]
02:01 It's dry, but good.
02:02 We're gonna make some frosting.
02:04 [BLANK_AUDIO]
02:06 With the aloe care, wait, hold on.
02:11 [BLANK_AUDIO]
02:21 Let's talk about medication.
02:27 So I'm on a lot and this is the full list.
02:31 Zolair is a lifesaver, point blank period.
02:34 That is just a quick shot that I do in my stomach and
02:39 it's yeah, pretty easy.
02:41 Hyzentra is a weekly infusion that takes three to four hours.
02:48 And it was originally prescribed to me by my doctor who helps treat my dysautonomia.
02:54 But it's also really good for autoimmune issues in general and
02:58 has awesome anti-inflammatory purposes.
03:03 Next is Cromalin,
03:04 which I showed in my last video just when I was premedicating for dinner.
03:09 I take four liquid vials before breakfast, before lunch,
03:13 before dinner, and then before I go to bed.
03:16 The next is Xyluton, also known as Xiflo.
03:19 That is a huge one for me.
03:22 That one's really, really, really important for keeping my airways open.
03:26 Montelutcast, aka Singular, aka depression drug.
03:31 [LAUGH] Next is ketotophen, ketotyphin.
03:35 I don't really know how to pronounce it.
03:36 But I also used to be on that twice a day, but
03:40 now I'm just down to once a day, which is great.
03:42 Hydroxazine is another one that I was on twice a day, but
03:46 over the last few months I've tapered it down to once a day.
03:49 It is also used for anxiety, which is like a two for one special for me, I guess.
03:55 Like it kills two birds with one stone, that's what I'm saying.
03:57 Next is fexofenadine, that's just Allegra, so
04:00 you can buy that over the counter.
04:02 I was on that three times a day, but again, over the last few months,
04:05 I've worked with my doctor to taper it down to once a day.
04:08 Centrazine is Zyrtec, again, you can get that over the counter.
04:12 I was also on that three times a day, but I've tapered it down to once a day.
04:16 Benadryl, everybody knows Benadryl, that is like a staple.
04:20 Thamotidine is just Pepsid, again, you can get it over the counter.
04:24 Omeprazole, everybody knows her, that I just take in the morning.
04:28 Aspirin is really good for flushing and rashes, so I take that once a day.
04:32 Okay, and then real quick for dysautonomia, pyridostamine, mitodrine,
04:36 flutocortisone, they all help with nerve impulses, blood pressure,
04:41 blood flow, all that good stuff.
04:43 And then last is Prozac, fluoxetine, that's for my anxiety,
04:48 just cuz I'm a little anxious sometimes, probably for good reason.