(Adnkronos) - Aumentare la conoscenza della cheratite da Acanthamoeba e la consapevolezza dei rischi ad essa connessi, ribadendo il ruolo centrale della prevenzione e della diagnosi precoce e sottolineando la portata trasformativa dell’avvento di polihexanide, primo farmaco mirato per il trattamento della Cheratite da Acanthamoeba frutto del lavoro di ricerca e sviluppo italiani. Questi gli obiettivi del Dialogue Meeting , promosso dalla rivista di politica sanitaria Italian Health Policy Brief, organizzato in collaborazione con l’Alleanza per l’Equità di Accesso alle Cure per le Malattie Oculari e tenutosi a Roma.
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00:00Pain, vision blurred, photophobia and abundant cremation, these are the main manifestations
00:10of keratitis dacanthomeba, a serious parasitic eye infection of which is responsible, in
00:15more than 80% of cases, the improper use of contact lenses and that, if not temporarily
00:20diagnosed and treated, can lead to blindness.
00:23To increase the knowledge of the pathology and awareness of the risks associated with
00:27keratitis dacanthomeba, the central role of prevention and early diagnosis, the Dialogue
00:32Meeting was held in Rome, promoted by the Italian Health Policy Brief magazine and organized
00:37in collaboration with the Alliance for the Equity of Access to Cures for Eye Diseases.
00:41In the suspicion of dacanthomeba, certifications must be made, which are the microscope with
00:46focal and the sample for microbiological examinations, because treated in that phase, the effectiveness
00:52of the treatment is very high, if you expect when the cyst, when the parasite deepens
00:57in the cornea, the treatment becomes much more problematic.
01:00The therapy is based on two antiseptics, which are chlorexidine and PHMB, approved by the
01:06European Agency EMA, and now we are waiting for the approval of AIFA and we hope it arrives
01:11on the market soon.
01:12The meeting was a moment of confrontation that has seen converge recommendations and
01:16proposals of the medical-scientific community, patient associations, but also of politics.
01:20Precious indications were enclosed in a social manifesto to raise awareness of health care
01:25patients on this ultra-rare and serious disease.
01:27The purpose of this manifesto is precisely to raise awareness of public opinion, in particular
01:34health workers, but also citizens, because this disease can be prevented, not only
01:39cure with this new medicine, this polyhexanide, which was put in place by an Italian pharmaceutical
01:47company, but it can be prevented, so prevention is also the goal of this manifesto.
01:53In the transformative scope of the advent of polyhexanide, the first drug aimed at the
01:57treatment of keratitis by Cantomeba, as a result of the work of Italian research and development,
02:02two needs side by side, early diagnosis and taking care of the patient.
02:06All activities that can be supported by politics, in particular by the Intergroup that I chair,
02:12which is on eye diseases, which deals particularly with these rare diseases, because they are
02:18often unknown diseases that require special attention.
02:22It is therefore essential to disseminate information on this pathology, so as to help patients
02:26to add the correct diagnosis in a short time, dispelling serious effects, as the pentathlete
02:32Alice Sotero says.
02:33I obviously went to my reference oculist, who cured me of an herpes, because the year
02:40before I had an herpes and I was thinking of a recidiva, and then he sent me to other
02:47of his colleagues because I did not respond to therapies.
02:49I was sent to Grosseto by Professor Sarnicola, where I did an eye scrapping and where they
02:55actually found the positivity of the keratitis by Cantameba.
02:59From that moment on, I started the cures, the pains were very strong, because it was
03:04two weeks that I had the disease, an ulcer was created that caused me a lot of pain,
03:10I was in bed for a long time because the anti-inflammatories, the pain killers, did not have any effect,
03:17and little by little, through the therapy, the pain decreased and I was able to resume
03:23the training and my road to Paris.