(Adnkronos) - "Con la Sla, la sclerosi laterale amiotrofica, il fattore tempo è determinante, abbiamo un tempo scadenzato, i nostri bisogni necessitano di risposte immediate. La celebrazione di giornate come questa serve per rafforzare, rimarcare e consolidare la necessità di sensibilizzazione” e sostegno delle istituzioni. Lo ha detto Pina Esposito, segretario nazionale Associazione italiana sclerosi laterale amiotrofica (Aisla), in occasione della 17.sima Giornata nazionale della Sla, sclerosi laterale amiotrofica, il 14 e 15 settembre, all’illuminarsi di verde di centinaia di monumenti in tutta Italia.
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00:00The celebration of days like today serves to reinforce, to highlight and consolidate the need for sensitization.
00:16And so it means leaving an attention light open the day after the National Day
00:25to keep a very high level of attention on a community that is facing a pathology that has a very strong assistential weight.
00:36And so the network of volunteers, the network of families, of people who are ill with SLA,
00:43the institutions, are fundamental because immedesimarsi means putting not only the skills, but the dedication, the deepening.
00:58Because we have a very determining factor, which is time.
01:03And time is a decadent time, so our needs need immediate, certain answers.
01:12And this is also done by taking advantage of these occasions, which for us are something very important, very significant.
01:22Because every time it is a renewal and it is a reminder of what our needs are, of what we need.
01:31And that when there is an assistential weight within a family, knowing that there are interlocutors and institutions that respond, that weight is more sustainable.
01:41Making a network, making a team is certainly a winning opportunity.
01:47Skills, dedication and commitment must be words that put, I repeat, and that give thickness to make a team, to make a square and therefore to make a network.