(Adnkronos) - Con una diretta streaming su YouTube e sui social, che ha consentito agli spettatori di interagire e commentare, Aisla, l’Associazione Italiana sclerosi laterale amiotrofica, ha radunato nell’evento "Una promessa per la Ricerca", grandi personaggi dello sport, dello spettacolo, giornalisti, istituzioni, ricercatori e clinici per fare rete nella lotta contro la sla, una malattia degenerativa invalidante. L’evento ha dato il via alla campagna di raccolta fondi natalizia a sostegno della Ricerca scientifica, l’unica speranza per un futuro senza Sla.
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00:00With a live streaming on YouTube and on social media, which allowed viewers to interact and comment,
00:11AISLA, the Italian Asclerosy Lateral Amyotrophic Association,
00:15gathered in the event a promise for research.
00:18Great characters in sport, show, journalists, institutions, researchers and clinicians
00:24to network in the fight against ASLA, an invalidating degenerative disease.
00:30This initiative is the promise.
00:32The promise to take a commitment of closeness, but above all to raise funds for research.
00:39Research is the only possible way to be able to fight this terrible disease.
00:45The program, rich in interventions and testimonials, has put at the center the strength of a common commitment.
00:50The dialogue between associations and institutions is essential to meet the needs of people with ASLA.
00:57Institutions, private-social, private, world of professions, research,
01:02all together we must give those answers that are still missing.
01:06The government considers this a priority.
01:09People affected by ASLA are the most fragile among the fragile, they have little time
01:14and for this they need many, many, many operators
01:20and certainly for us, of course, giving answers means taking care of them, taking care of their families.
01:28The evening opened the fundraising campaign in support of scientific research,
01:34the only hope for a future without ASLA.
01:37Two years ago there was a real turning point.
01:40ASLA is a rapidly progressive disease.
01:44For the first time it was possible, in this small percentage of people with ASLA,
01:49who have a sub-immune mutation, to stop the disease.
01:53So it is possible to look for new ways and these new ways are based now,
02:00for the first time, on scientific knowledge.
02:03The level is growing month by month.
02:05It is not a week where there is no new acquisition.
02:08The moment will come when this acquisition of topics will certainly lead to new therapies.
02:14I believe in it, but not with a generic hope.
02:17I believe in it because knowledge is increasing to such a level that this will happen sooner or later.
02:22Associations of patients like ASLA collect, welcome and spread the needs,
02:28the needs of people affected by a disease.
02:31Cures at home must be organized wisely around the needs.
02:37The health aspect is certainly a characteristic element that characterizes us,
02:43but it must not be the priority aspect.
02:47It gives the agenda of priorities, but we need to be framed as people.
02:53Only in this way can we go beyond the disease.
02:57So dedicated paths of who knows what to do, without if and without but.