(Adnkronos) - In questo numero:
G7: Ancona capitale europea per salute del cervello
La Statale di Milano presenta il nuovo corso di laurea in ‘Scienze psicologiche per la prevenzione e per la cura’
La dermatologa Ersilia Tolino, “Jak inibitori sono farmaci orali che intervengono su infiammazione e prurito” da dermatite atopica
Pubblico e privato uniti per migliorare la gestione del paziente oncologico
Salutequità, incontro su priorità a salvaguardia sostenibilità del servizio sanitario nazionale
Italiani sempre più “pet lover”, ottobre “mese della salute del cane”
Dermatite atopica, anticorpo monoclonale tralokinumab approvato anche per adolescenti con forma moderata grave
Generali e The Humany Satefy Net, il progetto: 300 migranti futuri professionisti della salute
Alimentazione, al Senato un incontro per un modello nazionale di buone pratiche
Per concludere lo Speciale Salus Tv dal titolo: Aimar compie 30 anni. A Roma il punto sul presente passato e futuro dell’associazione
G7: Ancona capitale europea per salute del cervello
La Statale di Milano presenta il nuovo corso di laurea in ‘Scienze psicologiche per la prevenzione e per la cura’
La dermatologa Ersilia Tolino, “Jak inibitori sono farmaci orali che intervengono su infiammazione e prurito” da dermatite atopica
Pubblico e privato uniti per migliorare la gestione del paziente oncologico
Salutequità, incontro su priorità a salvaguardia sostenibilità del servizio sanitario nazionale
Italiani sempre più “pet lover”, ottobre “mese della salute del cane”
Dermatite atopica, anticorpo monoclonale tralokinumab approvato anche per adolescenti con forma moderata grave
Generali e The Humany Satefy Net, il progetto: 300 migranti futuri professionisti della salute
Alimentazione, al Senato un incontro per un modello nazionale di buone pratiche
Per concludere lo Speciale Salus Tv dal titolo: Aimar compie 30 anni. A Roma il punto sul presente passato e futuro dell’associazione
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NewsTranscript
00:00In this issue, G7, Ancona, European capital for the health of the brain.
00:16The state university of Milan presents the new course of degree in psychological sciences for the prevention and the cure.
00:22The dermatologist is Silvia Tolino.
00:24Jack inhibitors are oral medicines that intervene on inflammation and pruritus by atopic dermatitis.
00:30And again, public and private, united to improve the management of the oncological patient.
00:36Health and equity, meeting on priority, safeguarding, sustainability of the national health service.
00:43Italians more and more Pet Lover, October, month of the health of the dog.
00:49Atopic dermatitis, monoclonal antibody, Trallochinumab, also approved for adolescents with moderate form.
00:57Generali and the Human Safety Net, the project 300 migrants and future health professionals.
01:05Food, at the Senate, a meeting for a national model of good practices.
01:10To conclude, the special Salus TV with the title Aymar turns 30.
01:15In Rome, the point on the present, past and future of the association.
01:25Prevention, care, but above all awareness of the impact of neurological diseases on the health system, on people, on families.
01:33These are the main themes that come from Ancona, the headquarters of the Extra G7 of Health, chaired by Italy.
01:39Organized by European Academy of Neurology, in collaboration with SIN, the Italian Society of Neurology and with the Italian Strategy for the Health of the Brain.
01:49In Western countries, within the next 20-25 years, there will be a doubling of the population with dementia.
01:55Which would mean having in Italy 2.5 million elderly people affected by cognitive decline.
02:01With the overall social assistance and health costs that could exceed 50 billion euros in charge of the national health system.
02:09Today, I must say, there is not much awareness and perception of what is the burden and the weight of neurological diseases.
02:16And there is a certain inability to resume mental and neurological diseases within a single large chapter.
02:24We want, first of all, to open a discussion, a greater awareness and culture.
02:30Because we know that through prevention and a better care of neurological diseases, we can contribute to the improvement of the national health system.
02:41Medicine is making significant progress, experts guarantee.
02:45But it remains essential to focus on prevention, because the brain, once damaged, has a hard time regenerating.
02:52We teach children how to brush their teeth to prevent cancer.
02:57We teach children that physical exercise, sleeping well, eating properly, can already improve.
03:05Commitment, not staying all day using the phone, but having other social activities, are factors that promote the brain to work in the right direction.
03:16So already at the level of children.
03:18And also nutrition, because we know that there is a very important link between the intestine and the brain.
03:24Ancona, for a year, will be the European capital for brain health,
03:28becoming in fact a reference point for a new project,
03:32which provides Italy with a manifesto for brain health,
03:35together with countries such as Switzerland, Germany, Norway, Finland, Denmark and India.
03:40I strongly wanted to bring this award to the city of Ancona,
03:44because Italy can and must, with its One Health background,
03:49with our food system, our way of eating, our ability to relate, our culture,
03:57be a nation that can be the capital of brain health.
04:01Capital not only in Europe, but worldwide.
04:04This is the role for Italy, and this is what we hope to bring and disseminate, starting from Ancona.
04:09Giving priority to brain health is therefore a global imperative for public health,
04:13and ensuring that neurologists understand the importance of the neurological problems and the weight that these diseases carry.
04:23We know that about 43% of the overall load of neurological diseases,
04:28this data published at the beginning of this year in one of the most authoritative journals,
04:32is not yet sufficiently known.
04:35The concept of brain health is also little known,
04:38not only among neurologists, but also among professionals.
04:41It is essential that young people, medical students,
04:44those who want to enter the biomedical field,
04:47understand what brain health means.
04:55The State University of Milan has presented the new three-year course
04:59in Psychological Sciences for Prevention and Cure,
05:02instituted in the Faculty of Medicine and Chirurgy.
05:05The training path in the clinical field aims to form an absolutely innovative professional figure,
05:11which meets the increasingly pressing need for the psychological support of patients and caregivers.
05:17The three-year course in Psychology for Prevention and Cure
05:23is the first national example of a degree course
05:29that, within a medical faculty, aims to create professional figures of psychologists
05:35who know how to interact with doctors in the clinical-assisting contexts,
05:40to accompany patients even in the moment of acute diseases and then in the cure of chronic diseases.
05:47Great satisfaction also expressed by the Lombardy region.
05:50Starting to train professionals towards the criteria
05:56to guarantee real prevention to all citizens seems to me an important step.
06:02There is no clinic, no assistance,
06:06if there is no specific training in the most important topic, which is prevention.
06:12The new three-year degree course testifies to the increasing relevance
06:16of the figure of the psychologist in the context of health, from prevention to cure.
06:21We had the idea that this figure, that of the psychologist,
06:27was becoming important even before the pandemic, in the context of health.
06:35So, in the different phases in which a person unfortunately finds himself having to deal with the disease
06:43and in the prevention phase, which is becoming more and more relevant.
06:47The main goal of the degree course is to train psychologists
06:51capable of managing the psychological repercussions of organic pathologies.
06:55Which are essential and fundamental, as the clinical-organic pathology
06:59is often accompanied by a psychological problem,
07:03and recognizing it in a preventive way can help the patient
07:09to continue to adhere to the cures in a more effective way.
07:13Atopic dermatitis
07:16Atopic dermatitis is a chronic inflammatory disease of the skin in the pediatric stage,
07:21with a prevalence of about 20%, although recent data have shown
07:25that about 10% of adolescents and adults suffer from it.
07:29For its most typical symptoms, such as the continuous itch and the presence of visible spots on the skin,
07:34it can also have significant repercussions on the quality of life of those who suffer from it.
07:39For this reason, Ersilia Tolino, Director of the Complex Operating Unit of Dermatology
07:45and Responsible for Atopic Dermatitis in Chronic Inflammatory Diseases and Skin
07:50at the Fiorini Hospital in Terracina, in the province of Latina,
07:53should be diagnosed early and then treated in an admired and personalized way.
07:59Atopic dermatitis represents a diagnostic challenge,
08:02both for the clinical heterogeneity of the disease and for the diagnostic complexity.
08:06In fact, we remember that a wide variety of skin diseases
08:09share signs and symptoms of atopic dermatitis,
08:12but also for the inadequate response to traditional therapies.
08:15But how is this pathology diagnosed in practice?
08:19The diagnosis is based on anamnesis and clinical examination,
08:22familiarity with atopic diseases, pruritus and the presence of typical lesions,
08:26which are erythematous clots that can evolve towards black, erythematopapulovascular,
08:32which are the type of lesions of scarring and scarring,
08:36with a tendency to bacterial over-infection.
08:39Thanks, however, to the progress of research in this field,
08:42significant steps have been taken today,
08:44in particular with a new class of drugs.
08:47In the therapeutic scenario, as far as the most recent biological drugs are concerned,
08:52there are inhibitors, which are small molecules
08:55that block the enzyme Januskinase,
08:58intervening both on inflammation and pruritus.
09:01These drugs have the advantage of oral supply and rapidity,
09:05both in terms of effectiveness and on the pruritus symptom,
09:08which we know to be fundamental in atopic dermatitis,
09:11a sleep-disturbing dermatitis with an important impact on social life
09:15and on work productivity.
09:17Our experience is that the intervention strategy on atopic dermatitis
09:20must be targeted and precocious.
09:22The path of treatment must be much more personalized
09:26on the characteristics of the patient, with temporary access to therapies.
09:30In fact, this can revolutionize the management of atopic dermatitis,
09:34allowing results that until recently seemed unattainable.
09:45Improving the management of the oncological patient with lung tumors
09:49thanks to the support of innovative and digital tools such as telemedicine.
09:53This is the goal of the Public-Private Partnership
09:57in the Management of the Oncological Patient,
09:59the project involving MSD Italy,
10:01the National Institute of Tumors of Milan and the Politecnico di Milano.
10:05The optimization of the precocious care and management processes of the patient
10:09allows to achieve a temporary diagnosis of the disease
10:12and to carry out an effective path of care
10:15that meets the needs of the patient and his caregiver.
10:18What we present today is a truly strategic partnership,
10:22where at the center there is the new and innovative value
10:25that will be generated by the patient,
10:27but behind there is an extraordinary collaboration
10:30where we will put in common all the reciprocal capacities,
10:35skills and experiences related to the patient himself
10:40to be able to generate a new path of care
10:43that can create more value and therefore more life and more quality of life
10:48for all patients who will have the opportunity
10:51to be included in this new path of care.
10:54Already a national reference center,
10:56with 1,900 accesses to lung hypertumors,
10:59of which more than half come from different regions of Lombardy,
11:02the National Institute of Tumors looks at further innovations.
11:06Today we are talking about organizational innovation,
11:08therefore a new way to be able to see what we have done until yesterday,
11:12helped by the methodology of the Politecnico,
11:15which allows to reach with the same resources,
11:18therefore human capital, investments, technology,
11:22a better result for our patients.
11:25We treat patients,
11:27we are here to try to free the cancer of our patients from this disease.
11:31The possibility of optimizing resources,
11:34men, women, technology and structure is an element,
11:37it is a multiplier,
11:38therefore thanks to this opportunity that has been given to us
11:41and thanks to the organizational innovation that we put in place.
11:44The project, thanks to the synergy between public and private actors,
11:47opens the way to a new way of collaboration
11:50between different but complementary subjects.
11:52Politecnico has brought the skills
11:55more related to the areas of management engineering and digital health,
12:00a theme that we have been following for several years
12:03with the Digital Health Observatory of the Politecnico,
12:06but these skills, in this project,
12:09we were able to put it on the ground,
12:11clearly with the very strong collaboration of the National Institute of Tumors
12:16and also to make a comparison with international realities
12:20thanks to the international network of MSD.
12:31Discuss the situation, priorities and correctives necessary
12:36to safeguard the universality, equity and sustainability of the national health service.
12:42This was the intention of the Equity Group Sostenibilità ed Equità,
12:46promoted by Salute Equità and organized in Rome,
12:49which has seen illustrious personalities of the sector,
12:51such as representatives of institutions, Ministry of Health and Regions,
12:55Institute Superiore di Sanità,
12:57the National Agency for Regional Health Services,
12:59research centers, enterprises and health companies,
13:02to discuss issues related to access to health and its organization.
13:07The challenge of sustainability of the public health service
13:10is a challenge that we absolutely have to win,
13:13there is no way to lose it, we have to win it.
13:16Today's moment goes in the direction of finding together,
13:22together with all stakeholders, some levers
13:26to guarantee sustainability for the coming years.
13:31Fundamentally, there is an obviously important need
13:35to invest additional resources, more and more,
13:39on the national health service,
13:41which is one of the greatest public works
13:43carried out by our country since the Second World War.
13:47Then, guarantee of democracy, equity and accessibility to health care.
13:52So, certainly, to finance it, to finance it more and more,
13:55based on the real needs, not on the historical need,
14:00but on the real health needs of the population.
14:04To have a sustainable and adequate health service,
14:07it is necessary to put in place priority and concrete actions.
14:10The actions are certainly complex to put in place,
14:15but try to direct consumption where it is most needed
14:19and then try to get to prevention,
14:22so as not to have to support a system
14:26that is more and more complex and difficult to manage in terms of equity.
14:33Try to reduce these waiting lists,
14:35precisely so as not to make people wait.
14:38We must increasingly integrate this territorial health,
14:42which would also help to decongest hospitals,
14:46through the involvement of the medics of the territory.
14:49These are fundamental things to do
14:51if we want to try to dilute the problems that are today.
14:56The President of FEDER Sanità explains why,
14:58despite the increase in funds for the national health service,
15:02Italians are also increasing who give up care
15:05or resort to private health.
15:08We must understand whether the increase
15:10still absorbs the increase in costs,
15:13so we must understand if it has a real effect.
15:16Second aspect, I return to the issue of trust,
15:19there are people who have started to choose to go,
15:22let's say, to acquire payment services,
15:26and this is an individual choice.
15:30And there is another issue of putting the conditions on the citizen
15:33to have those services.
15:35But I keep saying, it is not just by offering more services
15:39and putting more resources that the problems are solved.
15:42The issue is also how they are used
15:44and how there is a responsibility of those who manage,
15:47but there is also a responsibility of those who use the services.
15:51If we don't make this leap, we won't get there,
15:54because the waiting lists do not contrast
15:56only with the increase in the offer.
16:01Domestic animals today are no longer simply
16:04dogs or cats to take care of,
16:06but real members of the family,
16:08able to produce significant benefits
16:10also for our health,
16:12as shown by pet therapy.
16:14On the other hand, that of the pet lover
16:16is a growing phenomenon, with more than half of Italians
16:18who have at least one friend with four legs,
16:20in particular dogs 36% and cats 33%,
16:23and a 20% who would like to have one.
16:26The experts of Cuore Mio,
16:28a company specializing in the production of pet food,
16:31but then, does man take care
16:33in the right way of his four-legged friends?
16:35It would seem so, however,
16:37despite the risks and the constant increase in cost of living,
16:40feeding, veterinary care,
16:42toys and accessories for our trust
16:44are a priority,
16:45a trend confirmed by the Italian pet care market,
16:47which is worth 4 billion euros.
16:49However, the care of an animal can be challenging,
16:51especially without the appropriate training.
16:53To further sensitize on these issues
16:55and promote greater awareness,
16:57Luca Deriu, founder of Cuore Mio
16:59and pioneer of dog foodness in Italy,
17:01explains that the Month of Dog Health was born,
17:04a free initiative open to everyone
17:06who wants to support people
17:08in the care of their faithful companions.
17:10The Month of Dog Health
17:12comes from the desire to offer
17:14a concrete contribution to the community,
17:16because I firmly believe
17:18that prevention and knowledge
17:20can improve the lives
17:22not only of our dogs,
17:24but also of people who take care of them.
17:27With this initiative,
17:29I want to offer people
17:31useful and practical tools
17:35to take care
17:37and take care of the well-being
17:39of their dog
17:41in a more conscious way.
17:43The initiative includes
17:458 appointments for the entire month of October,
17:47in each of which
17:49we will address
17:51a specific issue
17:53of dog health
17:55and I will not be alone,
17:57but together with me
17:59there will be all the experts
18:01of the Cuore Mio team,
18:03from the veterinarian,
18:05the nutritionist, the educator,
18:07the naturopath and also the breeder.
18:09In each appointment
18:11there will be the possibility
18:13to ask questions
18:15to which we will answer
18:17and I repeat,
18:19I wish that from each appointment
18:21people can bring home
18:23and register,
18:25I repeat, this initiative is totally free
18:27and you just have to fill out a simple form
18:29which is available on the website
18:31cuoremio.com
18:33But could we already anticipate something
18:35that a dog must take into account
18:37for its well-being?
18:39The dog's health
18:41mainly depends on a correct diet
18:43because what they eat
18:45every day
18:47has a profound impact
18:49on their health.
18:51There are many preventive checks
18:53by the veterinarian,
18:55a correct
18:57education of the dog
18:59and also an adequate movement
19:01are important
19:03for their health.
19:05Let's say that taking care of a dog
19:07is undoubtedly challenging.
19:09What I do in my daily life,
19:11for those who follow me,
19:13I try to make all this
19:15as easy and practical as possible
19:17so that everyone can take care
19:19of their dog without stress.
19:25Atopic dermatitis
19:27is an inflammatory disease
19:29with which it is extremely difficult to live
19:31especially in its moderate and severe forms
19:33and this is from the clinical
19:35and psychological point of view
19:37especially in adolescence.
19:39Today, however, with the approval
19:41and reimbursement of the human monoclonal antibody
19:43Traloquinumab
19:45already indicated for adult patients
19:47with severe atopic dermatitis
19:49also for those between 12 and 17 years of age
19:51a very important step forward
19:53in the treatment of this pathology
19:55to improve the quality of life
19:57also of these boys.
19:59To underline this is Fabio Presutti,
20:01medical director of Leofarma Italia,
20:03the pharmaceutical company
20:05producing this innovative therapy.
20:07They will immediately have at their disposal
20:09a new drug that has shown
20:11important results
20:13such as effectiveness and safety
20:15and also an innovative device
20:17a preemptive pen
20:19that will halve the number of supplies
20:21consequently increasing
20:23compliance with the drug itself.
20:25Leofarma is a company
20:27that has more than 100 years of life
20:29and in the early years
20:31had an interest in all areas of the skin
20:33so diabetes, metabolism, etc.
20:35In the last years,
20:37the last 20 years, it has been a company
20:39committed only
20:41in medical dermatology
20:43and in the last 5 years
20:45we have entered the world of biologics.
20:47The areas of development are essentially
20:49two, at the moment
20:51are psoriasis and then
20:53atopic dermatitis
20:55which I referred to before.
20:57Here too we have drugs for
20:59the formularies
21:01which are topical drugs
21:03and biological drugs for the most severe forms.
21:05Traluchinumab
21:07is a subcutaneous supply drug
21:09that acts on interleukin-13
21:11a key mediator
21:13of signs and symptoms of atopic dermatitis
21:15and it is precisely the medium-severe forms
21:17explains Anna Belloni
21:19professor of dermatology
21:21and responsible of pediatric dermatology
21:23and malachiere of the company
21:25Hospital University of Padova
21:27to have on teenagers
21:29the worst outcomes in terms of
21:31sociality and quality of life.
21:33Considering the psychology of the teenager
21:35that is, his way of putting himself
21:37in the social field
21:39of friends and so on
21:41having a visible pathology
21:43means having
21:45a problem of
21:47management of friendships
21:49but also because it is a pathology
21:51which precisely because it is extremely pluriginous
21:5324 hours a day
21:55tends to create fatigue problems
21:57in these subjects, little
21:59attention in some cases
22:01because the pluritus, the lack of sleep
22:03tend to remove
22:05also the concentration
22:07for the typical locations
22:09of atopic dermatitis, the impossibility
22:11to do sports and therefore
22:13social activities
22:15and this naturally
22:17greatly reduces their quality
22:19of life. So
22:21the fact that there are
22:23simple therapies that do not have
22:25side effects, that do not have
22:27consequences at a distance, that even
22:29modify the history of
22:31the disease
22:33itself, so they also modify
22:35the possible consequences
22:37I believe it is an
22:39extremely important fact that must
22:41be conveyed as much as possible
22:43both among doctors and above all
22:45among patients, of course, in such a way
22:47that they can access the cures
22:49that they can finally be better.
22:57Generali and Human Safety Net
22:59the foundation of the group that aims
23:01to help people in contexts of
23:03vulnerability has presented in Rome
23:05the project for the training and
23:07employment of 300
23:09social workers. The initiative
23:11aims to give a concrete
23:13response to the needs of a country
23:15where 65% represent
23:1724% of the population.
23:19We have an obvious demographic problem
23:21that in Italy is very strong
23:23births continue to decrease
23:25and cohorts
23:27are reduced. At the same time
23:29we have a number of elderly people
23:31who grow up. I, as I have
23:33remembered, I am 64 years old,
23:35as I tell my children, when we
23:37in 64 we will go to prison
23:39they have no chance.
23:41So putting together these two
23:43needs, on the one hand
23:45helping refugees who arrive
23:47in Italy to train and be able to
23:49assist elderly people who
23:51need it, I think it's a
23:53very nice initiative and I think
23:55that today it has been a good testimony
23:57of the good work done by Human Safety Net
23:59our foundation, which
24:01by now is a bit old and busy
24:03and as we have said
24:05has almost half a million beneficiaries
24:07today as help.
24:09So it is essential to have
24:11qualified health and
24:13care professionals who are able
24:15to support the challenges of
24:17demographic change in action.
24:19As explained by Gianluca Perin,
24:21General Country Manager of Generali Italia.
24:23It is a project, frankly,
24:25that puts together two needs
24:27and in our opinion is the way
24:29to interpret the welcome.
24:31So not a told welcome
24:33but concrete and practical
24:35that takes people in situations of weakness
24:37as you have seen from today's testimony
24:39and instead brings them
24:41to a personal realization
24:43but also helps many of us
24:45that we absolutely want,
24:47you have also heard what
24:49the San Donato group said,
24:51so then those who have these needs
24:53in an extensive way, so there are great
24:55opportunities, but
24:57then we also have some ideas
24:59for some other segment
25:01not only in the health sector
25:03so there will be surprises.
25:05The initiative relies on the collaboration
25:07of people engaged in the world of
25:09welcome and health, but also
25:11in the world of institutions,
25:13as witnessed in every intervention
25:15by the Russian senator.
25:17This is also the way to address
25:19the issue of migration,
25:21not to say come and do
25:23whatever you want,
25:25the important thing is that you have the right to come
25:27and then we will take care of you.
25:29It is sacrosanct what the generals
25:31are doing, to take
25:33our need,
25:35that of the personal need
25:37and transfer it to the need of others
25:39than that of being able to arrive in Italy
25:41and become full-time citizens.
25:43It is the cardinal Matteo Maria Zuppi.
25:45It is the cardinal Matteo Maria Zuppi.
25:47It is the need of people
25:49who care
25:51about food,
25:53about weakness, about fragility.
25:55It seems to me that certain
25:57criteria are right.
26:03The Mediterranean diet,
26:05the Made in Italy, at the service of
26:07the health of children.
26:09This is one of the themes at the center of the meeting
26:11promoted by the Vice President of the Senate of the Republic,
26:13Gianmarco Centinaio.
26:15From good regional practices to national guidelines
26:17on the feeding of children in nests.
26:19The Made in Italy as a gold standard
26:21for the Mediterranean diet of the youngest
26:23held in the Senate's nursery room.
26:25The comparison between pediatrics, dietitians, institutions
26:27and companies like Plasmon was an opportunity
26:29to reflect on how important it is
26:31that the regions equip themselves with tools
26:33to direct the feeding of children
26:35in children's schools,
26:37as already done by the Lombardy region,
26:39with the aim of establishing common principles
26:41and validated by the scientific community.
26:43We support this initiative because we believe
26:45it is important to invest in the health
26:47especially of our children.
26:49From this point of view, we believe
26:51it is their right to have access
26:53to quality food.
26:55And so we are working on the traceability
26:57of the products together with Plasmon
26:59so that even in the range
27:01from 0 to 3 years, there are
27:03100% Italian products that involve
27:05farmers in a very important job
27:07because we know how strict
27:09are the rules
27:11to protect the health of children
27:13and on the other hand give value
27:15to those who transform in Italy
27:17into products of a completely Italian range.
27:19For this reason, Coldiretti is here
27:21and for this reason Coldiretti will continue
27:23to work with farmers
27:25but also with transformers
27:27who really know how to enhance Made in Italy.
27:29The development project
27:31and also the design
27:33that sees nutrition as therapy
27:35I reiterate this concept
27:37Nutrition is the therapy
27:39that makes the child grow well
27:41and makes him grow not only from a point of view
27:43of weight and height
27:45but as we have seen also
27:47has an extraordinary strategic influence
27:49also in neuropsychic development
27:51and therefore it is the pediatrician
27:53who must take charge
27:55facing the family
27:57in the course of the evolutionary age.
27:59Pediatrics in this sense
28:01is very sensitive to this aspect
28:03and we have the opportunity
28:05to have a pediatrics
28:07branched and capitalized
28:09on the national territory
28:11we have large hospitals
28:13we have university structures
28:15where culture is taught
28:17we have the nursery of specialization schools
28:19with more than 4,000 young pediatricians
28:21who will become pediatricians
28:23in the course of the next years
28:25and our commitment as pediatricians
28:27is to take on this responsibility
28:29as a child's lawyer.
28:31Plasma is 122 years old
28:33so you understand that it is a piece of history
28:35of this country
28:37on the other hand then you ask yourself
28:39is it a commitment for the future?
28:41It is a commitment of a society
28:43rooted in the country
28:45that wants to give its own contribution.
28:47The thing we have done
28:49is to create this Academy project
28:51there are institutions
28:53there are social scientists
28:55there are young professionals
28:57so we tried to eliminate
28:59those approaches to silos
29:01which in fact are very self-referential
29:03but produce little.
29:05So today is an important day for us
29:07because we have created a model
29:09a model that some regions
29:11have begun to use
29:13and we are convinced that
29:15the transparency of what children eat
29:17is also a big investment
29:19for families.
29:25More than 200 people
29:27interconnected with UNAMAR
29:29families, volunteers and Italian and international doctors
29:31specialized in this pathology
29:33have participated in Rome at Casa La Salle
29:35of the IMAR
29:37Italian Association of Anorectal Diseases
29:39which in this time has actively supported
29:41more than 700 families
29:43an opportunity to make the point of the situation
29:45on the past, the present and the future of this association
29:47founded by a large group of parents
29:49doctors, specialists and volunteers
29:51led by a mother, Dalia Aminov
29:53still president.
29:55In these 30 years
29:57the quality of life of patients
29:59has certainly improved
30:01why?
30:03They can
30:05confront each other
30:07they can see that there are other
30:09people who have their own
30:11pathology, they can
30:13talk about intimate things
30:15and above all
30:17they can also make
30:19much deeper friendships.
30:21The other thing is that
30:23thanks to studies, for example
30:25in pharmacology
30:27and studies also in anatomy
30:29for example
30:31thanks to pharmaceutical companies
30:33there are now presidiums
30:35that help patients
30:37to empty themselves better
30:39and therefore to be
30:41continent for 24 hours.
30:43We must think
30:45that children born with
30:47an anorectal deformation are like
30:49if they were born without a finger
30:51I can make you play the piano
30:53very well but
30:55I can never give you your finger back
30:57and so this is what happens.
30:59Currently one of the
31:01latest innovations are
31:03tissues made with
31:05genetic engineering for which
31:07for example the reconstruction
31:09of vaginas with
31:11cells of the patients themselves
31:13and this
31:15we are also
31:17getting results
31:19that we do not know if they are good
31:21or not good because of course we are only
31:23at the beginning of a path and
31:25we will see what will happen in the next
31:2720 years when the girls
31:29become older.
31:31The surgeon Massimo Rivosecchi,
31:33among the pioneers of the LEMAR surgery,
31:35remembered how the surgery of these
31:37congenital deformations was done in America
31:39at the end of the 80s, Alberto Pena
31:41the one who revolutionized the operating technique.
31:43At the time we were not
31:45happy but we were pleased
31:47with what we were doing
31:49we all went to see
31:51what this
31:53technique was and I was fascinated
31:55so fascinated
31:57that I, together
31:59for example in my hospital with Dr. Zaccara
32:01who was a young man
32:03just over 30 years old
32:05in 1987
32:07I went for the first time to do a course
32:09dedicated to the treatment
32:11of congenital deformations.
32:13Since then, says Rivosecchi, we have
32:15had a more functional vision of anatomy,
32:17from the abdominal via we have gone on to treat
32:19anorectal deformations from the low
32:21to the perineal via,
32:23obtaining more effective results.
32:25Thanks to these latest
32:27techniques put in place and thanks also
32:29to the advancement of those
32:31that have been the various
32:33discoveries within
32:35pharmacology, surgeons
32:37are always more capable of doing these
32:39type of
32:41complicated interventions
32:43and the quality of life
32:45improves and also
32:47let's say the patients are at the end
32:49happier and happier.
32:51Many steps forward have been
32:53made by IMAR, thanks to their commitment
32:55the daily life of patients with this rare
32:57malformation and families is
32:59improved. Last achievement, the exclusive
33:01USB pen that the association
33:03Le Galacchi provides by writing to the IMAR email
33:05all the information about your case.
33:07The pen that we have put
33:09in place thanks to the help of
33:11pediatric surgeons, meanwhile
33:13it is a small USB pen
33:15on which in an
33:17interactive way we can
33:19have various
33:21possibilities
33:23of interaction
33:25and have strings that are
33:27interactive, so by clicking
33:29various strings one can
33:31have the photos of how
33:33the child was born,
33:35what are the various
33:37pathologies that the child
33:39has had and above all
33:41what we have done
33:43within this summary table
33:45is the sum of those that are
33:47all the interventions
33:49and the most important things that
33:51concern the patient, therefore
33:53not only
33:55his clinical history
33:57but also those that could
33:59be the difficulties that the patient
34:01could encounter and
34:03therefore in English and
34:05Italian these
34:07cards are put on this key
34:09that the patient can bring
34:11around the world. Touching but
34:13full of hope is the message that the actor Sebastiano
34:15Somma has dedicated to the little ones of Eimer
34:17of which here we report an extract.
34:19Every three days a
34:21child is born with a
34:23MAR, an anorectal
34:25malformation. I'm
34:27talking about a rare disease that involves
34:29one or more malformations
34:31that are not seen but
34:33that disrupt the life of parents and
34:35make it difficult for the little ones.
34:37The Eimer helps
34:39families to temporarily access
34:41the centers of excellence
34:43in the first days and then
34:45accompany these people
34:47for all phases of life
34:49so there is absolutely
34:51nothing to be ashamed of.
34:53Visit the site
34:55call Eimer
34:57will answer you
34:59who has passed before you
35:01and the quality of life can be
35:03improved and so much.
35:09This was our latest news
35:11If you want to contact us, you can write to
35:13salute-adnkronos.com
35:15Thank you for following us
35:17and see you next time.