(Adnkronos) - “Francesco è nato con la Sindrome di Norrie, una malattia genetica rara. Totalmente cieco, ha sviluppato una grave forma di autismo che non gli consentiva di comunicare. La lega del Filo d’Oro ha insegnato a noi genitori come aprire un canale di comunicazione con lui, utilizzando come strumenti di intermediazione alcuni semplici oggetti. È stato come accendere una luce nel buio che ha permesso a Francesco di crescere. Quello con la Lega del Filo d’Oro è stato un incontro fondamentale”. Questa la testimonianza della signora Anna Maria, mamma di Francesco, ragazzo affetto dalla Sindrome di Norrie, durante l’incontro organizzato a Roma dalla Lega del Filo d’Oro per la celebrazione dei 60 anni di attività della fondazione e il lancio della nuova campagna di sensibilizzazione dal titolo “60 anni non si festeggiano, si fanno. Insieme”.
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00:00It was very important for us to meet the Lega del Filo d'Oro when Francesco was three years old,
00:11at a time when we were really desperate, and it was like meeting a safe harbor while we were a boat in the storm.
00:23Unfortunately, Francesco was born with a rare genetic syndrome,
00:27Norri's syndrome, which makes him completely blind and has developed a rather serious form of autism,
00:33which does not allow him to communicate, and therefore it was immediately difficult to have a communication relationship with him.
00:42And so the meeting with the Lega del Filo d'Oro was important because it taught us parents,
00:50first of all, to be able to have a channel of communication with him.
00:54They introduced a communication called objective communication,
00:58and he, with these objects, manages to give us the opportunity to understand what he wants at that moment.
01:08For Francesco, not being able to communicate was very difficult,
01:13because his emotions and desires could not be satisfied.
01:23But in this way, with this communication, he was a light in the dark.
01:28For Francesco, and also for us, it was very important to meet the Lega del Filo d'Oro,
01:33precisely because it put us in communication, and it put Francesco in communication with the world.